Rare Disease Day 2023
Rare diseases represent a large group of individual diseases affecting small populations, often with difficult diagnoses and less treatment options than more common diseases.
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13q Chromosome Deletion News
News
News articles related to Rareshare and Rareshare communities
A Kidney Disease Trial is Enrolling Now
Community: Membranoproliferative Glomerulonephritis (aka Complement 3 Glomerulopathy C3G)
Complement 3 Glomerulopathy study recruitment continues.
Researchers are in need of IgAN (IgA Nephropathy) patients for a clinical trial.
Community: IgA Nephropathy
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Rare Disease Day 2023
Rare diseases represent a large group of individual diseases affecting small populations, often with difficult diagnoses and less treatment options than more common diseases.
Read full article
Rare Diseases and Mental Health
Everyone will face a health crisis in their lifetime. The crisis will likely be associated with emotional stress, anxiety and physical challenges.
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Early Diagnosis of Rare Diseases
Prenatal or neonatal diagnosis of many genetic rare diseases is becoming possible. Should it be done?
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Rare Disease Day 2023
Rare diseases represent a large group of individual diseases affecting small populations, often with difficult diagnoses and less treatment options than more common diseases.
Read full article
A Kidney Disease Trial is Enrolling Now
Community: Membranoproliferative Glomerulonephritis (aka Complement 3 Glomerulopathy C3G)
Complement 3 Glomerulopathy study recruitment continues.
Rare Diseases and Mental Health
Everyone will face a health crisis in their lifetime. The crisis will likely be associated with emotional stress, anxiety and physical challenges.
Read full article