Rare disease community

Uniting rare disease warriors worldwide

RareShare® connects rare disorder communities to share vital information and support. Sharing your experiences here not only helps researchers better understand your disease but also offers assistance to those touched by rare diseases.

Find your community

About RareShare

RareShare® connects rare disease communities, fostering online information exchange among patients, families, researchers, and medical professionals. Our platform encourages sharing for mutual benefit, offering over 1,000 disease communities and the option to create new ones. Membership is free, promoting support networks while ensuring information accuracy and user privacy.

RareShare® connects rare disease communities, fostering online information exchange among patients, families, researchers, and medical professionals. Our platform encourages sharing for mutual benefit, offering over 1,000 disease communities and the option to create new ones. Membership is free, promoting support networks while ensuring information accuracy and user privacy.

RareShare® connects rare disease communities, fostering online information exchange among patients, families, researchers, and medical professionals. Our platform encourages sharing for mutual benefit, offering over 1,000 disease communities and the option to create new ones. Membership is free, promoting support networks while ensuring information accuracy and user privacy.

Our communities

Join RareShare® to meet other people that have been touched by rare diseases. Learn, engage, and grow with our communities.

Find your community

Create

Create a sense of community for those affected by rare disorders

Communicate

Communicate with others that are affected by the same condition

Contribute

Contribute condition-related information, experience, support, and resources

Start a community

Don’t see your condition on Rareshare?

Start your own! With a worldwide network of 8,000 users, you won’t be the only member of your community for long.

Start a community page
Start a community

Don’t see your condition on Rareshare?

Start your own! With a worldwide network of 8,000 users, you won’t be the only member of your community for long.

Start a community page

General Announcement

News articles related to RareShare® and RareShare® communities

A Kidney Disease Trial is Enrolling Now
Community: Membranoproliferative Glomerulonephritis (aka Complement 3 Glomerulopathy C3G)
Complement 3 Glomerulopathy study recruitment continues. Read full article
Primary Sclerosing Cholangitis Clinical Trial
Associated community Primary Sclerosing Cholangitis Hyperlink to external article For patients living with Primary Sclerosing Cholnagitis (PSC), finding the right treatment can be difficult. A clinical trial is currently seeking individuals who have been diagnosed with PSC to investigate a potential new therapy. Learn more through and see if you qualify through @Antidote.me: Antidote Prescreener... Read full article
Rare Disease Day 2023
Rare diseases represent a large group of individual diseases affecting small populations, often with difficult diagnoses and less treatment options than more common diseases. Read full article

Recent
News

News articles related to RareShare® and RareShare® communities

A Kidney Disease Trial is Enrolling Now
Community: Membranoproliferative Glomerulonephritis (aka Complement 3 Glomerulopathy C3G)
Complement 3 Glomerulopathy study recruitment continues. Read full article
Rare Disease Day 2023
Rare diseases represent a large group of individual diseases affecting small populations, often with difficult diagnoses and less treatment options than more common diseases. Read full article
Researchers are in need of IgAN (IgA Nephropathy) patients for a clinical trial.
Community: IgA Nephropathy Read full article